Tuesday, July 27, 2010

Hello from Madison where it's warm & muggy...
Treatment has gone very well today. It was procedure as usual today...potassium and then chemo drugs (2) then more potassium. Tuesday's our long day...Wednesday & Thursday will be much shorter for administering the drugs.

We met with the doc (not our usual Dr. Rose, but another in the group we've met with before and like, Dr. Bailey). I am scheduled for a PETscan on Monday, August 16 with treatment following as usual on the 17th, 18th, and 19th - assuming all goes well with the PETscan. "Well" means that the scan will show, after this 3rd treatment has had time to do its thing, that the cancer is shrinking - is GONE too much to hope for??? - and remission is hopeful. He said the scan could show "no change" and in that case, we would keep on for another 3 cycles with another PETscan after that. The scan could also show that things have progressed or grown and in that case, we'll take a step back and look at what else can be done. He said that if the scan shows growth - not a good thing - even then, we are still in this "together", meaning that we will explore options together and they won't turn me out with a "have a good life, what's left" attitude.

I voiced my concern about the effectiveness of the chemo now since I have not lost my hair as expected. He said that we are not to gauge the effectiveness of the chemo on the inside of my body with what I see on the outside. Most people do, he said. But it is not an accurate test.

My "numbers" were good, though my blood pressure shot sky high just when they took it before giving me the "scull & crossbones" drugs (that's what I call the chemo stuff...comes with bright orange warning labels, nurses are suited up in protective garb...and they hang that stuff and run it into my IV...but we pray it's working!). However, when they took it early during the doc appointment, it was very normal. Just before they took it before the chemo, we had waited over 2 hours for the chemo appointment. When I went to check why so long, the receptionist said that I hadn't checked in - but I had, and with her! She just forgot to check me in...so by the time I got in for chemo, I guess I was stressed. I wasn't feeling that way particularly because we were visiting, but I was anxious about being next & getting started. And I hadn't eaten anything at all yet and it was nearly 11:00. So - to make a long, boring story come to an end, I ate lunch and "calmed down" and my blood pressure came right down to the normal range again. Good.

We had supper at Porky Pine Pete's BBQ. Very good...smoked pulled pork and smoked brisket...yumm! We also had smoked mashed sweet potatoes - that was excellent - and smoked chocolate chip cookies...very unique!!!

Oh - and earlier with lunch we had Babcock ice cream. Very good and creamy. See, we really come to Madison to eat; the chemo is just a guise to get us here!

All is well...very well. THANK YOU, FATHER!!!!!!!! The scriptures about dancing and praising God - that's us, except we're too tired to do much dancing on the outside. We ARE dancing on the inside!!!!!

Love you...
Don & Deb

5 comments:

  1. Regina7/27/2010

    One of our family members asked us why we smoke everything when we cook on the grill. Our answer? Cause it tastes good!! Smoked mashed sweet potatoes and smoked chocolate chip cookies sound very interesting. Think about you and pray for you a lot!
    Love,
    Regina

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  2. Anonymous7/27/2010

    you have come to my mind several times today and each time i have thanked God for you both. I am glad these days are not too hard on you although I know they take more out of you than you say. Oh, we had a false alarm on the cold Sunday; just trying to be causious!Thinking of you.Smoked everything? Interesting :) <3 km

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  3. Dearest Deb and Don,
    We will sleep much better tonight after getting
    the news of your day in Madison.
    Your doctors seem deeply concerned and trying
    to do their very best for you and that is
    encouraging. The Good Lord is surely leading
    the way.
    The many, many prayers being said for you are
    being answered.
    Love,
    Mom and Dad

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  4. Anonymous7/28/2010

    Hey Don and Deb....glad to hear things went well on Tuesday. Sorry about your wait. My blood pressure would have shot up too if I hadn't eaten by 11 am. :-) We're praying that those nasty ole drugs are doing their job and blasting all of those ugly cancer cells. It sounds like you have a great team of doctors who really know what they are doing and care about you. For that we are truly thankful. We'll be praying for you especially during these next two days that all goes well and that you have a safe trip home. We'll see you Thursday.
    Love you much,
    Donna
    p.s. I didn't even know you could smoke chocolate chip cookies. :-)

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  5. David and Laura7/28/2010

    So good to hear your day ended well. Having talked with the Dr. and again confirming your plans of care, knowing your Bp returned to normal, and having gotten through your drug regime, and getting to try new foods done new ways! Praise God for being there to help you in all the little things....and for allowing you to have faith through it all! You know we are lifting you up to our Father daily, many times! May you and Don rest in "our Daddy's" arms at the end of the day! We love You! David and Laura

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