Thursday, December 30, 2010
The pain has subsided tremendously - even went for supper with my folks tonight...Don had to work :( ... It is absolutely wonderful to be so pain free. Don is so very much relieved - I can see it on his face. His cute little bearded face!!! There are some bladder issues that we are trying to work through that give a bit of pain - can't stand more than a second or two, walking is a problem, though not as painful as just standing. BUT - the big overall pain is gone!!!!!!!!!!!!!!! I am so, so, glad. Thank you, God - thank you, God!!! Thank you God.
After we got home the other night from the doctor's visit and we had found out that things were not as good as we had hoped, Don & I were just sitting quietly when two dear, sweet loved ones came by with burgers and frostys from Wendy's. What a blessing they were to come by. When they came in I was sitting in my rocker, so they came over to give hugs. Jill gave a hug first, then Kent gave me a hug - and that's when IT happened.
I've contemplated what this might be like for some time - what would I do?, how would I react?, what would the other person do? Well - what happened? Ha! My wig came off completely. It fell down behind my back in the rocker. Oh, my!! I've always been concerned about the shock factor from other folks in seeing a bald person without warning. Kent & Jill were fantastic. Kent said he wouldn't look (it didn't bother me for them to see my bald-headed, though I do get concerned for those seeing my baldness) and I'm trying to get it back on while I'm laughing so hard and I can't find the tag that tells me front from back. I get Thelma Lou on and Don is cracking up - I have it on upside down!! Two more tries and Don keeps saying "it's on backwards". Oh my!! Finally got her on straight and everyone settles in - what hysteria!!!
Then there's thanks to God for providing some comic relief in all of this...what a sense of humor God must have. We enjoyed the escapade - and just chuckle now and again thinking of it.
Take care as we enter a new year...hardly seems possible.
God's grace & mercy to you all..
Love,
Don & Deb
Tuesday, December 28, 2010
First - Dr. Rose. The results from the CT scan were a bit "not good" (forgive my English). The tumors in my lungs are growing and there are more of them. All in perspective, though. Dr. Rose showed me the CT scan itself because he wants us to understand what he sees and put it all in the proper perspective (as a way of finding some good out of all this, I'm sure!). The tumors are small in comparison to the overall size of the lungs. It's like looking at the night sky and seeing the stars. Some "stars" are tumors; some are not. He said some folks have lots of tumors; I do not. But the ones I do have are growing. The tumors in the pelvic region are not growing - they are stable; as are the lymph nodes in the pelvic region. All stable. That is fabulous. Great news there...but that is where all the pain is. Just can't figure it out. Anyway, the tumor growth in the lungs disqualifies me from continuing in the clinical study. The current chemo will end - no treatment today.
It appears I have 3 options: One is to find another chemo to try. Dr. Rose says that by the time a person gets to this point in treatment, finding another chemo to work is slim to none - about 10-15% chance that any other chemo will work. He said any "magic bullets" (not the food processor thing from QVC) are used right away, not saved up for later. Another option is to stop chemo all together, find something to do with this pain and live my merry life. The third option - and the one we chose - is to stop chemo for a time, aggressively deal with the pain to get it under control, then in a month or so, continue on with chemo (still with the same 10-15% chance of working). Dr. Rose said that this cancer, after months of watching, seems to be a slow-growing cancer and putting off chemo for a time will probably not do any further harm. Probably not. No one knows, for sure, this side of heaven, do they? Of course not!!
We are disheartened, to say the least. Don said something today about being put through the ringer - I guess so!
Then we saw the pain doctor. He is throwing the whole box of candy at me for this one. I'm taking everything to the max - the Neurontin, the morphine, the compazine, the Zofran, the motion-sickness patch, and anything else I have that I cannot think of. By the time we meet together for church on Sunday morning, I may be a complete zombie!!! Maybe not - maybe I'll be pain-free and thrilled!!!! We go back to Cleary next Tuesday for evaluation and adjustments. Something has to work - nothing is so far, not completely anyway. I'm not sleeping much, not eating much (lost another 8 pounds since Dec. 7th - yipee!!!) and generally physically done in, just about.
Believe it or not, all in all, our spirits are good. Don is struggling and beside himself simply because he does not know how else to help me. The pain thing has taken its toll on us both and he's ready for some relief. His nerves are shot!! But our spirits are good. God has blessed us with wonderful family and delightful friends and church family - all of which are a huge blessing. He has blessed us with peace that passes understanding time and time again. We are grateful for His care.
Thank you for holding us up in prayer today - we feel the calm and quiet of the Holy Spirit, we feel the love of our Father gently carrying us, we know, beyond feelings, that we are loved and cared for. God will not leave us or forsake us, even though days seem uncertain. God is NOT uncertain, the days may be, but God is not.
Love you, each one...
Don & Deb
Thursday, December 23, 2010
Have a great day...we're celebrating today with Kurt, Jenn, and the girls. Mia and Livi will spend the night tonight and after Dad & Mom leave, we'll travel around to look at the lights. They really enjoy that. There's one here in Rockford that is quite the display - timed to music and all. That's one of our favorites, though it's on a rather busy street and parking is a challenge. Not quite as involved as a drive-in movie, but on the same order - we pull over, maybe we'll have snacks this year, tune in the radio and enjoy. Last year we sat for about 15 minutes and still hadn't seen it all. We'll see this year.
Merry Christmas, with love...
Don & Deb
Tuesday, December 21, 2010
And the celebrations of Christ's birth just go on and on...looking forward to our annual Christmas Eve service at church. A time of great joy, to be sure. We will get together with a little of Don's family on Christmas Eve (our big celebration is always New Year's Day) and then we'll gather with my family out at Dad & Mom's on Christmas Day.
Hope that whatever you do, whether you gather with family or have a quiet celebration - whatever - that it is filled with hope in our Savior, thanks for His coming, and praise to our Father for His wonderful plan.
The last couple of weeks have had their challenges...medicine for pain isn't working well, tummy turbulence and the like have just come to camp at our home and it's made for challenging times. Tomorrow is the CT scan in Madison and we won't know of the results until next week. I also begin another round of treatment tomorrow. The schedule is off a bit because of the holiday, but that's OK...we just roll with it.
Much love to you and yours...again, focus on the important - the Savior that was born and your response to that gift - and let the rest fall where it may!!
Love you...and Merry Christmas!
Don & Deb
Wednesday, December 8, 2010
We spent about 1 1/2 hours with the doctors yesterday and we are going to try some new things. I'll try a new drug (new for me) from a different "family" to see if that helps the pain without the side effects that I have with the morphine. The doctor also suggested ginger for the nausea, etc. He asked if I have problems with motion sickness (is there water in the ocean????) because he said he has lots of trouble with motion and cannot take morphine, either, without the nasty side effects. He takes lots of ginger like you'd find in the health food store (not in the spice aisle, though it's the same, I think). So off on another adventure - to the health food store. He's also prescribed a little physical therapy thinking that it might be muscle-related and could possible benefit from stretches, etc. ("torture" is what I'm thinking!!). He was very kind, asked lots and lots of questions and seemed knowledgeable without being a "know it all" or just tossing out textbook ideas. He is from Australia and has a thick accent, so we had to pay very close attention not to miss a thing.
So, we'll try some things and see. All in all, I'm doing really well...I've got the morphine, etc. down pat pretty much and know that I can take it 2x each day, so if I have things going that day, I can time it to help when needed most. The heating pad works wonderful, too.
Make it a great day...the Lord is kind and gracious and we thank Him for providing wonderful care-givers along our path. Thank you for your prayers on our behalf and that of our families.
Love,
Don & Deb
Monday, December 6, 2010
We are making a quick trip to Madison tomorrow to see a pain oncologist. My regular oncologist in Madison just isn't sure what else to do with me, so we'll see the specialist and hope that he can offer some wise counsel. I've been keeping track a bit of the pain to try to narrow down the who-what-where-when-how of it all. It doesn't seem to be "chemo"-related...it does not go away when I've got a week or two off (as do other aches/pains). It doesn't seem to be tumor-related (at least according to the latest CT scan). There are some consistencies, though, and perhaps those will point us in the right direction.
I'm also scheduled for another CT on Dec. 22 to see how much progress with treatment we've made since last time. Last CT showed the tumors in my lungs were shrinking - and we are hoping that this upcoming CT will show even more "shrinkage". I wasn't expecting good news last time - I am excited about this next one and am looking for more good news.
Don & I are enjoying the sounds of the season - we have music playing a lot these days. Music has such a marvelous way of soothing, of comforting, of challenging, of reinforcing Biblical truth and can be just plain entertaining! (I was doing dishes the other morning singing away when I realized Don was just standing and listening to me. I do not have a "singing" voice at all, but we were having fun!!) And the harmonies of the songs we enjoy are just beautiful. We listen to a variety of styles with our Christmas music - jazz, gospel, quartet, "loud & bangy", instrumental - we even have a Beach Boys Christmas cd!!
One of the traditions that our family started years and years ago - and we continue to this day - is a "fondue" night when we put up our tree. This year was a bit different as we "fondued" a night or two after putting up the tree. We get small cans of sterno out and lots of things that go on a skewer or can be eaten with crackers or fingers...little Cheddar smokies, chunks of cheese, chunks of steak that has been cooked "rare" just prior to our meal, a couple of kinds of cheese balls, veggies & dip, smoked salmon & cream cheese, pickled herring - just fun stuff. We have eggnog first, then a time of thanks to God...thanking Him for a wonderful year and trusting Him for the year to come (more on that in a minute), then we "fondue" while watching White Christmas or some other favorite Christmas movie and our evening wraps up with chocolate fondue, fresh berries, pound cake, and the like. You probably have special times that you treasure with your family and we hope you enjoy the moments and memories of those times.
Yes, we've given God thanks for the past year. Just thinking - one year ago we were getting ready to celebrate my grandmother's 100th birthday (she'll be turning 101 in a couple of weeks and still going along!!) and also getting ready for our niece's wedding...and cancer wasn't a part of the picture at all. That we knew of anyway. We know differently now - but looking back over how our lives have changed since last Christmas - wow! Perhaps you've experienced change of grand proportions, too...a loved one has "gone on", perhaps you've received the news of a job change or loss, a diagnosis that just takes your breath away. Yes, I understand that. This I know...and can say with calm assurance from walking this road...God is still God and His plan for our salvation is the same. His Son came to earth as a tiny babe, grew to be a man that learned obedience - obedience that took Him to the cross. Fully man, fully God, Jesus Christ is the same yesterday, today, and tomorrow. For that we give God praise. You see, trusting God with my life - and my "forever" - brings such peace and calm. There is no fear in tomorrow - no fear. God has cared for me up to this point, He is faithful and true and will continue to care for me from this life into the next. I can hardly wait for "eternity" but for the loved ones I treasure so here on earth!!
Priceless memories these days are...may God bless your day today!
Love,
Deb
Wednesday, December 1, 2010
I'm always reminded of the purity, the freshness, the way new fallen snow can cover the dirtiest old pile and make it look new again...and God's compassion and forgiveness when we come with repentant and contrite hearts, as David did after his broo-ha-ha with Bathsheba. Actually, the Bible calls it "sin"! Thank you, God, for the precious reminder of Your mercy in such a practical way - snow!!
Have a great day...hope it's snowing where you are...
Love,
Don & Deb
Tuesday, November 30, 2010
I began another cycle of treatment last Friday and saw the doctor also. He is sending me on to a pain oncologist (I think that's what he's called anyway). He/she is a doctor that deals with pain in cancer patients...a little bit more focused than a pain-management doctor. Perhaps we can get things figured out through him/her. My doctor just said he's at a loss as to what other meds to try...I've run the "normal" range of meds. Problem is that while some of them help with the pain, I have a very low threshold for the side-effects and it is the side-effects that seem to swamp my boat these days.
We have decorated our home for the holidays and many of the items we put out have such fond memories of precious family and friends and good times gone by. If I could just leave you with one thought this season, it would be this...that each of us focus on what's really important and it's a "who" not a "what"...Jesus Christ. May He be honored by the lives we live and the faithfulness to His purposes this season...God bless you!
Love you, each one...
Don & Deb
Tuesday, November 23, 2010
We have much to be thankful to God for...let me start with my folks. Perhaps you've heard about the tornado that came through this area yesterday? Well, it took a similar path that the tornado of January '08 took...right across Hwy. 173 and towards my folks' home. They were struck badly in '08 and have been struck again! This time Dad's workshop imploded (as it did last time), limbs are down, fascia off the house...and like Mom said, "what are the chances?"!! The good news is that they are just fine, in fact, they were here at our house when the tornado came through. Now it's a matter of cleaning up...again! They are strong people and will do just fine, but the clean up gets wearisome...and then there's the rebuilding. Thank you for the prayers on their behalf.
The pain has returned in my back/abdominal area and the Tylenol isn't working. The doctor has switched it up for morphine, but I'm having trouble keeping it down. I am concerned about the morphine...I have an image in my mind of sorts that the morphine, for the cancer patient, only comes with end-of-life care/Hospice care. I know that LOTS of folks take morphine and it helps, but that's where my mind goes. I know - I'm being ridiculous. So I'm concentrating on things to be thankful for. I go through the alphabet and remind myself, with every letter, how thankful to God I am for...answers to prayer, blessings of family & friends, church family...well, you get the idea. I even name specific people from A-Z! Wow!! What blessings!!
Blessings to you and your family this Thanksgiving and continuing holiday season. I know it's a little early, but isn't Christmas music just such a treat!! Don starts playing our Christmas music in September!!
Love you, one and all...
Don & Deb
Friday, November 19, 2010
With Thanksgiving around the corner, here's an old but simple and delicious recipe for stuffing that we had the other night at church. Enjoy!
Bread Stuffing
3/4 c. onion, chopped
1 1/2 c. celery, chopped
1 c. butter
9 c. bread cubes
1 1/2 tsp. salt
1 1/2 tsp. sage
1 tsp. thyme
Turkey stock (packaged)
Melt butter and saute onion & celery until tender. Add seasonings to mixture; pour over 1/2 of the bread cubes in large bowl. Stir to combine and add remaining bread cubes. Add turkey stock to moisten, about 1/2 to 3/4 c. (Can be made ahead and refrigerated at this point until ready to bake.) Place in crock pot (I use those nifty crock pot liners to help with clean up!!) and cook about 3-4 hours on low. Can be baked in the oven, too...cover and bake at 350* for about 1 hour.
Have a great weekend...
Love,
Deb
Saturday, November 13, 2010
Thank you, God, for the relief...the praise belongs to You!!
Love,
Deb
Friday, November 12, 2010
Take care...have a great weekend...
Love,
Deb
Wednesday, November 10, 2010
Saturday, November 6, 2010
These last 7 weeks have been quite the challenge. I have just not been feeling good. Yes, there are times when there's some relief and those have been a welcome respite. I do think, finally, we have rounded a corner, so to speak, and perhaps am on the upswing. My abdominal/back pain seems to be lightening up and I am cautiously optimistic...I only say that because I've thought several times over the past few weeks that things were improving and then we headed downhill.
I'm sorry - I'm just not feeling very chatty today and probably don't sound very positive, either. I know lots of you live with pain and discomfort on a daily basis - and have for quite some time. I don't think I have, for the most part, so when I get like this and the pain/discomfort interfere with regular life, it's a challenge. One that I don't seem to be mastering.
Tomorrow we'll worship together with precious family & friends and THAT will bring peace and comfort to my weary soul. And I hope that our worship will be a blessing to the God we worship!
Love to each one,
Deb
Saturday, October 30, 2010
I have said out loud several times today...thank you, God...thank you, God...thank you, God...for a wonderful husband who has been called upon to do things he never thought he'd face, for a step in the right direction to feeling better, for simple "relief" (not too much simple about it today!)...but mostly for the confidence in Christ to face each and every day, come what may, with strength and courage, not of my own to be sure!
Good night...and again, thank you, God.
Love,
Don & Deb
One issue was the CT scan from last week and the great results. Yes, the tumors are showing "significant" decrease - but I wanted to know exactly what does that mean? Does that mean I am in remission? (He said "no") Well, then, exactly what are we talking in the whole scope of things? He said it is a "step in the right direction" that we hope continues. I am by no means "out of the woods". He mentioned the study being a 6-round study but that he hoped, as long as I was showing progress, that I could continue longer than that. I hope so, too. It was a little more sobering than last weeks all-out good news, but encouraging for sure. We are headed in the right direction. That's enough for now - it certainly is way better news than we've had any other time during this "thing"!!!!!
The other issue - the abdominal/back pain. Ha! Batten down the hatches!! Katie, bar the door!! I'm constipated!! Not again!!!!!!!! I know - you're thinking that this woman doesn't know a thing if she doesn't even know when she's, well, you know. I'm telling you - I don't have trouble in this area and believe I am the one who would know!!!! But the problem isn't "lower", it is the entire mid-section of my abdomen and he said it's "massive". We came to this discovery because nothing "cancer" in this area showed up on the CT scan. His only course of action, now, was to send me to a GI man for tests. Ugh. He kept asking, though, are you sure you're not "c". Well, I guess I'm sure, but would the CT scan if I was? Yes, probably, but maybe not - but he looked it up anyway. Don could see his face - I could not. Don said his eyes brightened when he pulled the scan up - and I think he chuckled, though he wouldn't dare at this point! That's when he said it's a massive and wondered how the CT readers could miss it, except they were looking for cancer not the other "c" word. That concerned me a bit, that this would be so obvious, when you're looking for it, but you could pass it up if you weren't? There's a life lesson there!!
Anyway...I'm taking something for this issue and hope for good results here soon. I could write an entire book on this issue - the humor is just begging to be told. It's rather like waiting for labor pains to bring the baby!! And Don - bless his heart - I can't walk by the bathroom without him asking "anything yet?" Oh, what life has brought us to. Oh, and by the way - I went into the drugstore for my own stuff this time (Don came along, though) and he said when we got back into the car that now that he knows what he's looking for, he can buy it next time! No disguise or anything!! Isn't love grand???
Pressing on...
Don & Deb
Saturday, October 23, 2010
Thank you for the comments, the phone calls - just the encouragement whether from far or near. Thank you for giving God the glory and praise - it all lays at His feet.
We had a good night and the wonderful news is sinking in little by little. So mindful that the praise belongs to God for this time.
Love to all,
Don & Deb
Friday, October 22, 2010
It's marvelous, wonderful news!!! The CT scan showed, according to our new doctor we saw today, that there is "significant reduction" in the tumors in my lungs. His words - significant!!! He went on to say that he could see NO lesions/tumors in my lungs, but would confer with Dr. Rose to see actually what Dr. Rose sees then compared to now. The tumor in the pelvic region is "stable" and we will take that as good news, too!! Our hearts simply overflow with joy and thanksgiving to God for this turn of events. We were not expecting good news this time at all.
I'm sorry for the delay in writing to you, but we hit a little bump in the road in our celebration today...I started throwing up (sorry for the not-so-pretty-picture) about 8:30 this morning and have just now (6:30) have been able to get out of bed and stand on 2 feet (my own). Pour Don - he has gotten a lifetime full of stuff today, but he has stood beside me every step of the way. I was released from the hospital around 3:00 (no chemo treatment today because of the vomiting - next Friday we'll continue).
We will jump for joy when I can jump and keep my tummy from continuing to jump...but our hearts are just overwhelmed with gratefulness. We are humbled by God's kindness. Thank you, Father...thank you!!!!
Thank YOU, dear prayer warriors, for you prayers on our behalf. Thank you.
With much love and thanks,
Don & Deb
Wednesday, October 20, 2010
It is of great comfort to know that we can share not just the good, but also the difficult with you, our family & loved ones. Great comfort. It is of even greater comfort to know that you share them with our Father in heaven...thank you.
Love,
Don & Deb
Tuesday, October 19, 2010
Thanks for your prayers...for Don as he is handling things here at home while I'm just trying to handle me. He is a hearty soul, but the anxiousness gets the best of us at times. We are trying to maintain our schedule "as usual" because we want to stay "normal" as best we can - whatever "normal" is!!
Thank you...and good night.
Love,
Don & Deb
Saturday, October 16, 2010
This is our week "off" from chemo. My legs are doing better...I'm not taking any of the "happy pills" anymore. Our next appointment on the 22nd is the full deal...CT scan, doctor's visit and then, hopefully, chemo. That will depend on what the CT scan shows and what the doctor's advice is. The CT scan is prescribed by the clinical trial to mark the progress of the chemo activity - is it working or not? But the doctor will use the results to make a recommendation to either continue or not. We shall see.
Enjoyed the latest "vegan" class last Thursday night. It was the best yet, I think. One of the recipes I will hope to make often - and I would even make it a "catering" recipe because it was really good! Very simple, too. They were called "Veggies in a Blanket" I think (I don't have the book in front of me, so I'm going by memory...!) and you take a tortilla (our teacher used something whole wheat, I think) and spread it with hummus ("hum" - like singing). She used "purchased" hummus and it was red pepper hummus with a dollop of pureed red pepper in the middle. She just stirred it all together in the little container it came in before spreading some on the tortilla, covering the entire tortilla using about 2 T. of hummus, depending of course on the size of your tortilla. Then down the middle close to one end, she made of row of fresh chopped greens - hers that night were romaine, fresh basil, and some other green that I can't remember, but it wouldn't matter what you used - just some chopped up greens, about 1/2 cup or so. Then she sprinkled grated carrots (about 1T.) on top of the greens and the same amount of chopped red pepper on top of that. She rolled it up tight and cut them into 4 pieces. That is it. It is a very "forgiving" recipe in that you can use any combination of greens and herbs or veggies on top to your liking. The hummus made it very tasty. Would even make a great combo with a bowl of soup!
Take care...and enjoy the beauty of God's creation today (and every day!)...
Love,
Deb
Monday, October 11, 2010
Treatment went well last Friday...same old, same old...legs hurt...blah, blah, blah. It's just been a difficult week all around. Hoping that this week, with the week "off" from chemo, the discomfort will level off a bit.
I do have a couple of recipes to share with you. Don's family does a "turkey day in the park" kind of thing this time of year. Family & friends gather at a park, cook turkeys on the grill and enjoy the out of doors. (This year it was 90* outside! Go figure!!!) Here's a sweet potato recipe that was there for lunch and you might find it just right for the holidays ahead. It's a recipe from a dear friend, Peggy Morley, and we've made it for lots of holidays since she's shared it in one of our church cookbooks. The other recipe is from the vegan class - and you will think "no way", but it was pretty good. I would make this...not everyone would it eat like the other sweet potato recipe, but it was good, I thought. Have fun with them both!!
Sweet Potato Casserole
1 c. granulated sugar (yes...1 cup!)
1/2 tsp. salt
2 eggs, slightly beaten
1/3 stick butter, melted (about 5 T.)
1/2 c. half & half (I used milk this last time...forget to get the half & half)
1 tsp. vanilla (I omitted this)
3 cups sweet potato chunks (I microwave fresh sweet potatoes for this...quick & easy!)
Optional: fresh cranberries - see note below
Topping
1/3 stick butter (about 5 T.)
1 c. brown sugar
1/3 c. flour
1 c. chopped pecans
Mix together the 1 c. granulated sugar, salt, eggs, melted butter, and half & half. Add sweet potatoes and pour into a 9-inch square baking pan. Mix topping ingredients together and sprinkle evenly on top of sweet potato mixture. Bake for 30-45 minutes at 375*.
Just a note here...try adding fresh cranberries with the sweet potato mixture. The cranberries add a tartness that is just right!
Zippy Yams & Collards
1 large bunch collard greens (Swiss chard was what we had), about 1 pound, rinsed & chopped
1/4 c. vegetable broth
1 onion, thinly sliced
2 large garlic cloves, minced
2 small yams or sweet potatoes, peeled & cut into bite-size pieces
1 T. Worcestershire sauce
1/2 tsp. Thai chili paste, or to taste
1/4 tsp. salt
1/4 tsp. pepper
2 T. freshly squeezed lemon juice
Remove tough stems from collards or Swiss chard and cut crosswise into thin strips. Set aside. Heat the vegetable broth in a skillet; add onion and garlic and cook until tender, about 10 minutes. Add the yams/sweet potatoes and additional broth to cover. Cover skillet and cook for 5 to 10 minutes, until the yams are soft when pierced with a fork. Remove the lid and simmer uncovered until about half of the liquid has boiled away. Stir in the collards/Swiss chard, Worcestershire sauce, and chili paste. Cook and stir until the greens are soft. Season with salt & pepper to taste. Sprinkle the lemon juice over all just before serving.
I know this sounds "weird", but the bitter greens and the "sweet" potatoes are a good combination...again, this was very good! Try it!
It's fall here in norther Illinois - trees are changing, the weather is changing...life changes, to be sure. One thing we know...our God does not change! He is the same yesterday, today, and tomorrow. For Him, our un-changing God, we are grateful!
Love, peace, and grace to you...
Deb
Tuesday, October 5, 2010
Thank you, God, that You have designed our bodies to live on this earth, down to the smallest of details. You have given purpose & meaning and function to things that we don't give a thought to - most of the time. We give You praise for the ways in which You care for us and protect us by Your design and creation. We thank You so much!!
Have a great day, enjoying the clean air that you breathe thanks to your nose hairs!!
Love,
Deb
Friday, October 1, 2010
Love,
Deb
It is really, really hard not to crack up during class - but I'm trying to be "mature" about all this and not act like a junior high kid. It's fun to be with friends and try these new things!! Some of the food was good, I thought. She marinated portobello mushrooms and then steamed them, sort of. We were to pretend they were a hamburger. They were better if you just took them for what they were - mushrooms! She also made an "ambrosia" salad with pineapple tidbits, mandarin oranges, craisins and basmati rice. That was the best of the evening. Basmati rice is very good - try some if you haven't before. Oh - I think it was organic, too. We had something I'd never heard of - tempeh. It's fermented soy beans. I think you use it in place of meat...she mentioned making "bbq" with it. She did a stir-fry with it...that was good, too.
We went out for supper afterwards.
Love you,
Deb
Thursday, September 30, 2010
This appears to be "no big deal" right now, but I have a "thing" on the back of my head - it's a "thing" I've had for years (and that's why me thinks it's "no big deal"). My oncologist would like it to be removed, so we've got an appt. w/dermatologist in Madison on Oct. 15 for biopsy (oh, goodie!) and procedure of some sort. The doc thinks it's nothing, too, but "to be on the safe side". I chuckled to myself - on the safe side? I have stage IVB cancer - where IS the safe side?
And a CT scan for chemo "progress" on the 22nd. Thank you for your prayers!
We've had more fun with this wig thing - who would have ever guessed the laughter it brings? On Sunday mornings, we try and leave about 7:30 for church. Sometimes it's 7:40 or so, but 7:30 is our goal. Last Sunday morning it was 7:15 and I was still in my jammies!!! So, I jumped in the shower, got dressed, plopped on Thelma Lou - and was sitting and waiting for Don to finish by 7:25!!!! He says he is now "king" of the bathroom. He can have it!
Little Livi, our 18-month old granddaughter, was over for a visit today. She was playing with stickers and she was putting them on my hair - but the stickers were kind of moving my hair around a little bit (I thought it might fall off, but it didn't...those stickers were sticky!) She had the funniest look on her face!
We are starting a new study in Sunday School class. We will be studying one book of the Bible each week - Old Testament this week, New Testament next week. (It seems a huge undertaking - one book each week? Some classes study an entire book for a year or two!!) This week we're starting with Genesis - the beginning, a good place to start. Reading through Genesis and seeing God's care for His people is mind-boggling. We're talking "His" people that were liars, deceivers, murders, selfish, and the list goes on - and yet God's grace and mercy shines through clear & bright. The whole time these people are on their sinful way, God is planning for their/our redemption. It seems they know it, too, because they loved God, worshipped Him, built altars to honor and adore Him, and obeyed Him, too. Build an ark, Noah? Sacrifice your son, Abraham? Be sold into slavery, Joseph? Yes, God required all of that and more from His people. Through their life stories I read about in the Bible, I can be encouraged, I can be spurred on, I can be faithful - and I can realize that God's plan and purpose for redemption includes me! How grateful and thankful I am!!
Love to all,
Debbie
Friday, September 24, 2010
And I am feeling good again - I've been bothered with pesky (or is it pesty?) abdominal discomfort for most of the week. Not nausea, more like a toothache. It's kept me up some at night (but thanks to pre-loaded Ipods from dear loved ones the nights have not been so long!) and I mentioned it to the doc today because Don said if I didn't, he would. It is a similar pain to what we started with just before diagnosis back in March - and we were both concerned that tumors were growing and pressing where they ought not. Dr. took another look at the latest CT (about 3 weeks old) and said nothing looked to be causing it - but would schedule another to be sure. Drugs, too, of course, might help the pain, but the drugs he thought would help the most would also cause other problems. We decided to stick with the pain we know rather than getting to know a new one! But the good news in all this is that just this afternoon it seems to be letting up. I'm looking forward to a marvelous night's sleep! Don says I just get real quiet when the pain increases - that's how he can tell what's going on. He's glad I'm talking again - who'd a thunk it????
God is good - all the time and I just pray that I can see His goodness despite the clouds on some days. My prayer for you, too!
Love and Godly eyesight...
Deb
Wednesday, September 22, 2010
Hair's gone! It's done. It's over. I'm fine.
I came home and jumped in the shower to get rid of all the little pieces and wow! What a funny sensation on my head! That warm water running all over my bare head was strange - I started laughing in the shower.
Yesterday I drove out to my folks in a little bit of a storm. The wind was blowing - so I decided to do a little test. I opened both of the windows in the van, driving 55-60 mph - with "Thelma Lou" on my head to see how much wind the wig can handle. Quite a bit, I can tell you! It never moved an iota!! Good to know my limits!!
Love,
Deb
Monday, September 20, 2010
God tells us that even the hairs on our heads are all numbered (Matt. 10:30) and I'm here to tell you that I have about 2,000 fewer than I did a couple of weeks ago! It's amazing that so many can fall out and there's still some left! I woke up Sunday morning about 4:30 and realized my hair was coming out in wads, just wads of hair and I thought, well, this is the day that I can no longer try and make things work. So out came the scarf - no good. Out came a little cap I have - no good. Then I got out "Thelma Lou" (as Don calls her) and it was good! I felt very comfortable and rather excited, too, because I was now ready for church BEFORE Don!! The wig will take some getting used to...it kind of moves around a little bit. I told my Sunday School gals that it's kind of like your pantyhose rolling down only the opposite - the wig rolls up! We got into the car after church and I looked in the mirror (I know - vain, vain, vain!) and it had hooched back a little bit so I pulled it forward and Don said he'd noticed something wasn't right, but didn't know what. So we had a big discussion about signals, etc., to let me know when the thing isn't sitting just right. He said, too, that he'd walk behind me in a big wind storm in case the thing blows off. Oh boy. I am going Wednesday to have what's left on my head shaved off or at least trimmed way down. Those with cancer who have gone through this have said time and again "you'll know when the time is right" and the time is right. Hair is everywhere and enough already!
We would all agree that losing my hair is the least of my concerns. Yes, that is right. Our doctor says that I will be on chemo the rest of my life - if it works. Does that mean I won't ever have hair again? Can you imagine? It's a possibility, for sure. So, I'm going to get used to "Thelma Lou" and anytime you call and want to do breakfast or lunch, I'll be ready in a jiffy!!!
Love,
Deb
Friday, September 17, 2010
All is well...this is our week off from chemo. It seems a nice break. My friend, Rita, a 5+-year cancer survivor, invited me to a cooking class she's taking with the Healing Pathways folks. I went last night and it was very interesting. It's all about the "right" foods to eat to prevent cancer (oops...!) and to help in the event you are diagnosed with cancer. It's a "vegan" diet, though our demonstrator didn't use that word until later in the demonstration. Last night was all about fiber - very interesting. Only plants have fiber - nothing with a face or a mother contains fiber. We laughed, but it's true. She made these meatless burrito/taco things with refried beans, guacamole (made with half frozen peas...not bad, actually, but the visual of peas whirring around in a food processor? Not so much!), a mixture of onions, zucchini, mushrooms, and red peppers with some seasoning, lettuce, all topped with a mango salsa and wrapped in a whole wheat tortilla. Very good. I will never be truly "vegan" (my first drawing ever in school was of a t-bone steak!) but it tasted good and I really enjoy the veggies and beans. And the best part? We got a cookbook to go with our class!
Have a great weekend!
Love,
Deb
Sunday, September 12, 2010
Fight. We here that a lot along this cancer journey. Fight. Yes, and it can be a good thing, too. In times gone by, we have encouraged others along in their "fights" with cancer..."keep fighting", "keep up the fight", "press on" - same thing? And now we are encouraged with those same words from you dear loved ones. Fight. It's a biblical principal, too, isn't it? Nehemiah records for us that when opposition to the rebuilding of the walls arose, he encouraged the people working that "Our God will fight for us!" (Nehemiah 4:20) I want to be on that team!! Fight. Paul writes quite a little about "fight". 1 Corinthians 9:24-27 records for us that he does not "fight like a man beating the air." No, he tells us to run in such a way as to get the prize. He fights as a man who will win! Three different times within the books of 1 and 2 Timothy, Paul encourages Timothy (and us!) to fight the good fight. Keep the faith. Win the race. Fight.
And fighting I am. One of the things I fight is the pure selfishness of this disease. And I bring this to you now as a prayer request. My life has been so me-focused since March that I find it very discouraging at times. I know that some of that must be...I know that, but we - Don & I - don't want to be inward-focused people. Never. I'm concerned I will just become so self-centered and "all about me" in conversations and life itself. This cancer is just huge and seems to get the better of my attention and thoughts most days. So I pray, constantly, that God will continue to "open the eyes of my heart" to the needs and concerns of those I come in contact with. That this cancer and the threat of oppression from it will NOT be the focus of my life - but the joy of living in the love and grace of our Lord would loom larger than life itself. A big task for sure. Fight. I will fight hard. Keep the devil and his discouragement away, dear Lord!
Please know that I share this, not looking for sympathy or an "it's OK", but as a way to let you see some of the struggles that we face in our fight these days. Yes, I know that we smile a lot, we are certainly blessed by the words, hugs, tears, and "arms around our shoulders" of you all and I don't want you to think for a moment that we have a perpetual "Pollyanna" attitude. We do not - there is discouragement along the way. And there are things that threaten to drag us down. I share those with you now. It's not all about beating the disease, it's about doing so in a way that we win the prize!! That prize of eternal life with our God and Savior.
Thanks for listening once again!
Love,
Don & Deb
Monday, September 6, 2010
Chocolate Zucchini Cake
1/2 c. butter or margarine, softened
1/2 c. vegetable oil
1 3/4 c. sugar
2 eggs
1 tsp. vanilla
1/2 c. buttermilk (I didn't have buttermilk this time, so I used 2% with a tsp. of vinegar)
2 1/2 c. flour
4 T. cocoa
1 tsp. soda
1 tsp. baking powder
1 tsp. cinnamon
1 tsp. salt
2 c. grated zucchini, peel & all
Topping
1 1/2 c. chocolate chips (I use the mini-chips)
1 tsp. sugar
1/2 c. nuts (I used pecans)
Cream together butter or margarine, oil, and sugar. Mix together eggs, vanilla, and buttermilk; set aside. Blend together flour, cocoa, soda, baking powder, cinnamon, and salt. To the butter, oil, sugar mixture add alternately the egg mixture and flour mixture until well combined. Stir in grated zucchini. Pour into 13x9" baking dish. Mix together chocolate chips, sugar, and nuts and sprinkle over cake batter. Bake in 350* oven for 40-45 minutes.
Have a great day...may all your labors be labors of love!
Love,
Don & Deb
P.S. I'm feeling "normal" - legs ache, tummy's a whirlwind, blah, blah, blah...but this will pass and in a day or two, I'll be out of the slump.
Saturday, September 4, 2010
All went well with treatment yesterday - except the scheduling part. We were there hours for a 30-minute infusion! While we waited...and waited...we met a lovely family from the Portage, WI area and got to visit with them. (They were sitting next to us and trying to decide where to eat lunch. I started laughing because they sounded just like Don & I when we try to pick a restaurant...then they were laughing when I told them that I didn't mean to eavesdrop, but it sounded so familiar!!) The mom was a smidgen older than I and newly diagnosed with breast cancer. She is in a clinical trial, too, so it was interesting to swap "war" stories!
Onward we go...thanks for your love & care!
Love,
Don & Deb
Friday, September 3, 2010
Tuesday, August 31, 2010
I just have to tell you this. Last night I was laying awake a little bit - not long, just waiting for a few minutes to pass by to take more Tylenol - and I began to think about the healings that Jesus did while He was here on earth that we find recorded for us throughout the Gospels. My mind settled on the men that lowered the paralytic down through the roof on a mat to get to Jesus for healing because there were too many people crowding the doorway. (Mark 2:1-12) What marvelous folks those were!! I'm guessing here, but don't you suppose the paralytic was so very grateful for those men who found a way to bring him to Jesus? That got me to thinking today and I've read just a little bit of the healings found throughout Matthew, Mark, Luke, and John. A lot of the sick, paralyzed, blind, demon-possessed, and otherwise unhealthy folks - not all, but a lot - were brought to Jesus by other people...family, friends, perhaps neighbors (the Bible sometimes just calls them "people").
My thought is this...how grateful we are, beyond words, for the love and care, prayers and tears of those of you that are surrounding us now and bringing us before the throne of God. And in the days to come. Unbelievably grateful!
Love you,
Don & Deb
Monday, August 30, 2010
Fewer side effects with this new drug? Or, maybe they said the side effects would be less intense. Either way, there are NEW side effects - one that I have not had to deal with yet, but I'm gathering is quite common for chemo folks. Oh, goodie. I am having leg aches/cramps that are a little bit of a problem. They started on Saturday, both legs and from my waist down. Off and on for Saturday and into the evening. But by Sunday morning they had taken up roost and appeared to being staying for an extended vacation. These aches or whatever are not charley-horse-type hurts. My legs feel like they are "percolating" - pulsating, maybe - but with aches that are constant. I talked with the folks at Madison and they have assured me that this is one of the side effects. We're starting simple-like with Tylenol, and though at first it seem to help, it does not seem to be doing the trick tonight. Perhaps it's because the sun has gone down and so has my patience. I am just trying to wait it out and hope that this passes as have the other side effects.
Pain tends to lower our resistance to the devil, doesn't it? Or at least it does mine. I feel myself becoming more vulnerable to feeling sorry for myself - and that isn't of any help to anyone! Thank you for your prayers for all this. I feel so very selfish coming to you and asking time and again for your prayers. Don and I cannot do this on our own! We need the help of our heavenly Father and we thank you for your petitions on our behalf.
Well, it's Tylenol-time and I'm trying to stay on track hoping that will help some.
Love and thanks,
Deb
Friday, August 27, 2010
We were in and out in a jiffy, though it was just about a 6-hour trip all together. It's about 8:00 and I am just fine. Tired and feeling a little strange - like how could I have gotten this chemo stuff and feel just fine-strange, but good! I'll take it!!!
Next Friday, same thing...Lord willing.
Have a great weekend...and give the Lord thanks for the blessings in your life...I'm guessing they are many!
Love,
Deb
Thursday, August 26, 2010
Good night, sleep tight!
Love,
Deb
Tuesday, August 24, 2010
We'll return Friday morning to Madison for more blood work (it's a marvelous thing that God has done to make sure our bodies keep making that stuff because there are those that stand ready to keep taking it!) and the first chemo. It should be a short morning!
Just wanted to jot you a quick note this evening...enjoy you're evening!
Love,
Deb
Friday, August 20, 2010
We are trusting that the Lord's hand is in this - we have prayed much for wisdom and open doors. We are just simply trusting His care!
Thank you for your kind words of encouragement during this most discouraging and emotionally overwhelming week. The words of Scripture that you've sent, words to songs and poems, along with your caring "I just don't know what to say" speak volumes of love to us and buoy our spirits. We hope that they have buoyed yours in return.
Love to all,
Don & Deb
Wednesday, August 18, 2010
We are still soaking in the news from yesterday. I said to Don this morning that I feel "whooped up" on. Just feel beaten up. I was reading back over my notes from our doctor's visit yesterday and I had missed reading one of the notes I'd made while doctor was talking. It was a note about the lymph nodes in the pelvic region - though the tumor has shrunk, there is increased activity in the lymph nodes. Just gets better & better, doesn't it????? The doctor also said that whether I do the clinical trial or the conventional combo drugs, the schedule will be the same...1 day a week for 3 weeks, one week off, then begin again. And it will be for the rest of my life or as long as it works...we had not heard that before. The rest of my life.
So now we wait...wait for the doc to call to say whether or not I can participate in the clinical study. Please pray for wisdom on our part - to know which path to take. We are leaning towards the study, but must wait to be accepted.
Again I would ask that you might pray for our families...Kurt & Jenn and Mia & Livi...our parents and siblings, too, and other dear ones (many of you!) that are walking close by our side...oh, how we love you, each one.
God's blessings to you, each one...
Love,
Don & Deb
Tuesday, August 17, 2010
We met with the doctor this morning and he reviewed the PET scan from yesterday. It appears that, once again, we are met with challenging news. His observation was that there is "an increase in metabolic activity in the lungs" and that there are new tumors growing. There is also increased activity in the pelvic lymph nodes. Ugh!!! Not the good news we were hoping for. Don said just a little bit ago - "I'm not liking this path we're headed down." No, we certainly aren't liking it.
He did say that there are tumors that have shrunk - that is good, but not good enough to continue the treatment. We have stopped the chemo that I have done up to this point - and scheduled to do this week. We have a couple of options...one is a trial study and the other is another drug combo. If I qualify for the study, I believe we will do that. If not, then we'll do the other. This is still all very "new" and we haven't had time to absorb the shock, once again, of what this really means. But we have calm heads - sad hearts - and we'll take a little time until we hear from Dr. Rose to make our decision.
We are staying in Madison for tonight and taking a little time to rest. We're trying not to be overwhelmed with all this. Like I said before - God is God no matter the outcome. Though it feels like the flames are lapping all around, we will persevere. Thanks for your love and concern.
Much love,
Don & Deb
Saturday, August 14, 2010
It's been a great week - filled with activity and "stuff". Seems the week just before chemo begins again is the best of the bunch and I think I saved everything for this week. Perhaps a bit much, though - I was in tears when I got home from the grocery store on Thursday and told Don that I didn't think I could manage by myself at the store anymore...it was one of those "but I used to be able to - what has happened?" moments. I have rested and that has passed and I will tackle that task again another day!
The body scan (PET) is set for Monday morning in Madison. We are leaving for Madison on Sunday after church and Kurt & Jenn and the girls are coming with us. We'll have a day or two in the pool amongst test/treatment and enjoy our time there. We meet with the doctor to get results on Tuesday and assuming all goes well with the PET scan, I'll start the 4th round of chemo on Tuesday also.
This is what I'm thinking right now - have you read about Daniel's friends being thrown into the fiery furnace? (Old Testament Daniel, the 3rd chapter...terrific story - and true, to be sure!) You've heard about Shadrach, Meshach, and Abednego? They wouldn't bow to the king or worship his golden image and the king got mad and threatened to throw them into a blazing furnace - and the scriptures say "immediately". No time to bargain or whine or complain or call a lawyer. Either they bowed now or else. And the king asks this pointed question..."Then what god will be able to rescue you from my hand?" (Dan. 3:15). The three men, who desired to worship the One true God Almighty, said this..."If we are thrown into the blazing furnace, the God we serve is able to save us from it, and He will rescue us from your hand, O king." Pretty confident, weren't they? But this is the part that really packs a punch. They go on to say "But even if He does not, we want you to know, O king, that we will not serve your gods or worship the image of gold you have set up." Wow! Even if God does not rescue them, they will not bow...they will endure what life brings.
I do not pretend to have the courage that these men had - and others in the Scriptures - but I serve the same God and my heart shouts out with them - even, God, if this cancer hasn't shrunk or gone away, even if ill comes my way - I will serve You no matter.
By the way, God DID rescue the 3 men. Scripture records for us that after the king threw them into the furnace, he saw FOUR men walking around in the fire - unbound & unharmed!!! The king referred to the 4th man as an angel (vs. 28). After the 3 men were brought out of the fire the Bible says that their bodies were not harmed nor was a hair of their heads singed, their robes were not scorched - and no smell of fire on them!! The king said this..."Praise be to the God of Shadrach, Meshach, and Abednego...they trusted in Him and defied the king's command and were willing to give up their lives rather than serve or worship any god except their own God." The king issued a decree that anyone who said anything against their God would be cut into pieces and their houses be turned into rubble, "for no other God can save in this way." The king recognized the One True God and HE is the GOD I serve - because there is no other God!!
So, armed with the Holy Spirit, the prayers of many, and the peace that passes ALL understanding, we are off to Madison. Come what may, God is still God and that will never change!
Love to you all...and many thanks...
Deb
Thursday, August 5, 2010
This isn't very high up on the "important" list, either, but it's one of the fun things in life. I am constantly on the lookout for a good blueberry muffin recipe. There are just some things that say to me "yes" and banana bread and blueberry muffins are two of them. I've got the banana bread down pat. Now on to the blueberry muffins. I think I may have found it. Then our daughter, Jennifer, made them and added a butter crumb topping making a good muffin so much better...perhaps a little powdered sugar/butter glaze might just put them over the top! Here's the recipe and feel free to add more blueberries, too!
Blueberry Muffins (courtesy of The Latimer House Cookbook)
2 c. sifted flour - ok, I didn't sift it
4 tsp. baking powder
3/4 c. sugar
1 tsp. salt
1 c. blueberries - I used frozen and a heaping cup
1/2 c. melted butter
1 c. milk
2 eggs, slightly beaten
Crumb topping
3/4 c. flour
1/4 c. sugar
Dash of salt
4 T. butter at room temperature
Preheat oven to 400*. Grease muffin cups (I used paper liners instead). Sift 2 c. flour, baking powder, sugar, and salt (I stirred, didn't sift) and add blueberries to coat. In separate bowl, combine 1/2 c. melted butter, milk and beaten eggs. Add to dry ingredients and mix only until combined. Spoon batter into prepared tin. For crumb mixture: Mix together 3/4 c. flour, 1/4 c. sugar and dash of salt. Cut in 4 T. softened butter and mix together as for pie crust until well-combined and crumbly. Sprinkle tops with crumb mixture. Bake until a tester comes out clean, about 20 minutes for large muffins and 12-15 minutes for mini-muffins. Be careful not to overbake. Makes 16-18 muffins.
"Taste & see that the Lord is good; blessed is the man who takes refuge in Him." - Psalm 34:8
Enjoy...
Deb
Monday, August 2, 2010
We have just passed the 4-month mark. This diagnosis came just 4 months...and though Dr. Rose said he could not be sure (wise man!), their experience showed a 12-month life expectancy for this particular cancer. You are smart enough to do the math. You know what that means. I ponder what I have done with this just-passed one-third of the rest of my life, if that is what God deems so. How have I spent it? I pray that what has been done has been to serve God's greater good and made a difference in the lives around me for all of eternity. Pressing on!!
Are you refreshed and encouraged when you read God's word? I certainly am. Sometimes nothing seems right with the world, life is chaotic and busy, there is unrest within and reading His word sets me upright again. Reading His promises to us, His caring, gentle ways, His basic teachings - the "always" and "nevers" and how to behave and treat other people...His word brings peace and calm to my soul.
However, there are many times when I read Scripture that I am challenged to move away from sin - to stop sinning - to clean up a heart-illness, to put bitterness and anger aside, to be gentler, kinder. There are times when Scripture sets my thinking straight again after I've listened to the world or wandered a bit from the Truth. Then there are things that God doesn't say. Those are some of the most intriguing to me. (But we must be careful lest we draw a conclusion that God never intended.) I was just reading an article written by Joni Eareckson Tada sent to me by a dear friend and the jest of the article was (or at least what jumped out at me) that it was not Jesus' purpose here on earth to simply heal people physically. (She sites examples from the gospel of Mark.) We hear much from well-meaning folks to the contrary, don't we? "If you only had more faith"...etc. Physical healing would be near & dear to Joni's heart, as many of you know, as she was paralyzed from the neck down in a diving accident when she was a teenager and I believe she may be late-50's or so now. She's had many years and difficult circumstances to ponder this healing stuff. Jesus' purpose, as we're told in Scripture, was to seek and to save the lost. There are many of God's people that will not experience physical healing in this lifetime. Perhaps I am one of them. Perhaps you are. But we all have the opportunity for spiritual healing - the only healing that really matters for all of eternity. Have you pondered how long eternity really is? As I read in Scripture - and you can, too - there are two and only two choices. Heaven or hell. Both real. And it's not a flip of the coin or some arbitrary thing. Our destination will depend on choices and paths we travel here, our obedience to God's word...repent, be baptized, live faithfully. And His loving grace and mercy. May it be so with you.
Go out today, be kind and compassionate in the name of Jesus!
Love you,
Deb
Friday, July 30, 2010
I must tell you - this cancer thing is just the weirdest thing ever. I do not feel like I have cancer, I do not look like I have cancer, I do not act like I have cancer (except for the drugs and side-effects). It's just weird. So I am taking all this as a huge, HUGE blessing from God and giving Him thanks and praise. And hoping that I can remember His kindness to me if or when the "difficult days" our doctor spoke of come to pass. Not borrowing trouble, just me talking out the top of my head!
Have a great weekend...
Love,
Deb
Thursday, July 29, 2010
Our appointment is at 10:00 this morning for the final "blasting" session this cycle. All is well...a little tired, a little nausea - but that is now "normal" and most manageable. Lord willing, we'll be home early this afternoon thereabouts.
Thank you so much for your prayers & concerns...they truly mean so much.
We thank God for sustaining, providing, comforting, and giving wisdom & guidance throughout.
Much love,
Don & Deb
Tuesday, July 27, 2010
Treatment has gone very well today. It was procedure as usual today...potassium and then chemo drugs (2) then more potassium. Tuesday's our long day...Wednesday & Thursday will be much shorter for administering the drugs.
We met with the doc (not our usual Dr. Rose, but another in the group we've met with before and like, Dr. Bailey). I am scheduled for a PETscan on Monday, August 16 with treatment following as usual on the 17th, 18th, and 19th - assuming all goes well with the PETscan. "Well" means that the scan will show, after this 3rd treatment has had time to do its thing, that the cancer is shrinking - is GONE too much to hope for??? - and remission is hopeful. He said the scan could show "no change" and in that case, we would keep on for another 3 cycles with another PETscan after that. The scan could also show that things have progressed or grown and in that case, we'll take a step back and look at what else can be done. He said that if the scan shows growth - not a good thing - even then, we are still in this "together", meaning that we will explore options together and they won't turn me out with a "have a good life, what's left" attitude.
I voiced my concern about the effectiveness of the chemo now since I have not lost my hair as expected. He said that we are not to gauge the effectiveness of the chemo on the inside of my body with what I see on the outside. Most people do, he said. But it is not an accurate test.
My "numbers" were good, though my blood pressure shot sky high just when they took it before giving me the "scull & crossbones" drugs (that's what I call the chemo stuff...comes with bright orange warning labels, nurses are suited up in protective garb...and they hang that stuff and run it into my IV...but we pray it's working!). However, when they took it early during the doc appointment, it was very normal. Just before they took it before the chemo, we had waited over 2 hours for the chemo appointment. When I went to check why so long, the receptionist said that I hadn't checked in - but I had, and with her! She just forgot to check me in...so by the time I got in for chemo, I guess I was stressed. I wasn't feeling that way particularly because we were visiting, but I was anxious about being next & getting started. And I hadn't eaten anything at all yet and it was nearly 11:00. So - to make a long, boring story come to an end, I ate lunch and "calmed down" and my blood pressure came right down to the normal range again. Good.
We had supper at Porky Pine Pete's BBQ. Very good...smoked pulled pork and smoked brisket...yumm! We also had smoked mashed sweet potatoes - that was excellent - and smoked chocolate chip cookies...very unique!!!
Oh - and earlier with lunch we had Babcock ice cream. Very good and creamy. See, we really come to Madison to eat; the chemo is just a guise to get us here!
All is well...very well. THANK YOU, FATHER!!!!!!!! The scriptures about dancing and praising God - that's us, except we're too tired to do much dancing on the outside. We ARE dancing on the inside!!!!!
Love you...
Don & Deb
Monday, July 26, 2010
Thank you for your continued prayers and concern for us both and our families. We cannot thank you enough.
I'll write more again after we see the doc tomorrow...
With much love,
Don & Deb
Saturday, July 24, 2010
Kurt & Jenn did a great job - and my dad was here the whole time, too. He's quite the salesman. Mom was here and brought homemade cinnamon rolls. (Really, the food is the reason we have a garage sale!!) Mia was trying to sell her stuffed animals and toys. She's saving for something special. It was fun to watch her learn from her dad & mom and grandpas how to "sell". She started greeting the customers, helping them look through her toys - especially if the customers had children with them. She got a little concerned when a couple people bought her toys for their dogs - that didn't seem quite right to her. How could I tell her that some people treat their pets better than their children? Anyway, she made a little money and was just thrilled - AND got rid of some of her stuff!
We are recuperating after the sale, trying to cool off from the hot, humid weather, and get ready for Madison on Tuesday. I've caught a little cold along the way and am feeling a bit under the weather, though still doing well. I'm just going to rest for the weekend and Monday.
We are welcoming our new preacher, Sherm Nichols, and his family this Sunday. They moved up here from Missouri earlier this week and we are looking forward to getting to know them and working alongside them for the Kingdom. They are precious folks who love the Lord and we are glad they're here. Welcome, Sherm & Carrie and Andy!
Take care...enjoy the week's end - and the week's beginning on Sunday.
Love to all,
Don & Deb
Friday, July 16, 2010
I did something last night I haven't done in just about 35 years now. Nothing bad - and please, if this is part of your everyday life, please don't take offense. OK - here it is. I made Hamburger Helper for dinner. What's more - it tasted good and we will probably have it again!! Don't get me wrong - there is nothing wrong with HH...it's just, well, I'm a caterer of sorts. I have over 200 cookbooks & magazines to draw from, I have a pantry full of stuff, along with a freezer with stuff in it, ready to go and a brain overflowing with ideas! One time, right after a luncheon we catered, my dear friend and the host of the luncheon, Phil, came into the work kitchen, folded his arms across his chest, leaned against the counter, tummy full of beef tenderloin, stuffed pea pods, turtle truffle cheesecake, frozen chocolate crepes with caramel sauce & whipped cream (real, no less) and asked what we (Don & I) had for dinner the night before. I had been preparing all day the day before the luncheon and so for supper, poor Don, we had TV dinners. I was embarrassed to tell him, but I told him the truth and he just cracked up - a "juxtaposition" to be sure, he said. It was kind of embarrassing - you know what I mean...TV dinners? Well, in the cooking world, HH hovers right around the same playground as TV dinners (which we also like...and I used to hide them under my groceries in the cart lest a catering client might see me! I am WAY over the embarrassment these days. I hang out those TV dinners for the world to see, though I did turn the HH box face down in the cart). Like a tailor or a seamstress buying a dress at a mart-store, or a carpet cleaner having all wooden floors. It's just a little embarrassing and begs the question, so are you good at what you do? Do you enjoy it? Or is it just a job? My point is, for someone looking at our grocery cart or knowing what we had for supper, would they be able to tell that I'm a caterer? Not when it's full of prepared stuff like that.
For everyone - everyone - I come in contact with, can they tell by looking at my life on the outside that I am a Christian or is my life/being a Christian a "juxtaposition" of terms? I am ashamed to say that, no, not always has an outsider been able to see Christ clearly in my life (sometimes not even an insider!). Cancer has allowed me a long hard look at the package others see all the time - and of course, that leads to the heart of the matter. Am I pleasant? Helpful? Grouchy? Do I convey the love and hope of my Savior? Am I a "glory-child" of God's - giving Him the glory for His work - through good times and difficult - in my life. Am I obedient? Faithful? Though we are most grateful to the doctors & medical world for their God-given talents, abilities, and expertise, it is ultimately GOD that we give glory to for His unfathomable blessings. Like the TV dinners or the HH, I am embarrassed to say that I have not always been the best poster child for my King as I could be. I've lost my temper, I've spoken sharply to another, I've just plain sinned. We don't like to use that word, but that's what it is - that's what God calls it. But by the grace of God, He has forgiven me as His child - and now, now through this journey, as 1 Peter 1:7 says, "These have come (vs. 6 tells us what "these" are...trials of many kinds) so that your faith - of greater worth than gold, which perishes even though refined by fire - may be proved genuine and may result in praise, glory and honor when Jesus Christ is revealed."
Truly, truly I have not/am not suffering grief as like that of the one that penned those words, Peter, or the rest of those in the New Testament I read of...Paul, Stephen...no, my suffering, the little bit of it, is by no means to the extent of theirs. But I cling to the end of vs. 7 - that my faith, of greater worth than gold, may be proved genuine and may result in PRAISE, GLORY, AND HONOR (not embarrassment) when Christ is revealed. Amen and amen.
No special recipe needed for HH, but I do have a recipe to share with you. A dear friend, Sandi Getter, brought this to a funeral luncheon one day. It was all the rage. Ladies were hovering around the salad, trying to figure out what was in it. It was so delicious. She was gracious enough to share it with us - thank you, Sandi. We had it a couple of Sunday night's ago at a church potluck and if you haven't tried this or your part of the country hasn't enjoyed this yet...double the recipe; you won't be sorry!
Sandi's Pretzel Salad
1 cup of broken pretzels (small ones work best)
1/2 c. melted butter
1/2 c. sugar
8 oz. cream cheese, softened
1/2 c. sugar
20 oz. crushed pineapple, drained
8 oz. Cool Whip
Mix broken pretzels, melted butter, and 1/2 c. sugar together and press into a greased 13x9" baking pan. Bake at 400* for 8 minutes. Stir when taken out of oven and stir several times while it cools to room temperature.
Mix the softened cream cheese and sugar together with a mixer. Add the pineapple and stir. Fold in Cool Whip. Refrigerate until serving time. Just before serving, stir in pretzel mixture.
Have a great weekend...
Love,
Debbie
P.S. I had some of the HH leftovers for breakfast...mighty tasty.